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There are days in which I hate having my mitrofanoff and dream of the days when I didn’t have one. Granted, I was constantly wet, but I never had to be hospitalised when I had a bad UTI.

About a month ago I was puttering about making koldunai at home, whilst Munkie spent a few hours with his brother and nephew in a little park. I then went to catheterise later in the evening and it wouldn’t go in. I tried and tried but it wouldn’t go in. My abdomen and stoma were quite bloody and I was bent over in pain begging Munkie to take me to the hospital.

Thankfully the A&E department took care of me. I was dosed with morphine and the doctors & nurses tried to get a catheter into me. Sadly they couldn’t so I was wheeled into radiology for the urologist, Mr Rees, to use the ultrasound machine to puncture my abdomen and guide a supra-pubic catheter into my bladder (which was also punctured). And yes, I was awake.

I was moved to the urology ward and there was a mixup with regards to how I was to get morphine. They insisted on giving it to me by mouth and I insisted it be through the IV. When I get it orally I don’t feel the effects of the morphine, but it is more effective when via the IV. I was overdosed and ended up in ICU for about a day while my body recovered from a possible morphine overdose.

I spent about 2 weeks in hospital, which is not bad considering how long it took last time to recover. This time round I didn’t vomit blood and go unconscious, with having to require a ventilator to help me breathe.

I blame my latest bout of sepsis on the idiotic GP system here in the UK. The GPs don’t take my bladder issues seriously. And they like to act like demi-gods, who don’t like their judgement being questioned. And don’t even ask me about the receptionists who are the gatekeepers of the GPs. As well this latest bout has shown up how unhelpful my current urologist is. And I mean current as I mean to replace him shortly.

What I did notice when I was on the ward was how militaristic nurses grades are. They wear badges and epaulettes to designate their ranks – staff nurse, ward nurse, sister, matron etc. Plus a similar ranking for HCA – Health Care Assistants. Nurses, at least at Southampton General, take care of 7-8 patients with the help of the HCAs. So it’s a tad difficult to get a handle on the patients and what their particular needs are. As well, there is no assistance given with regards to bed-baths. I was given, everyday, a bowl of warm water with several towelettes and a single towel to dry myself off.

I was taken good care of but there were areas which I saw glaring examples of NHS beaucracy which could easily be handled if there was the political will.

I had good medical attention from the ICU nurses, Mr Rees (as the urologist), Andreas my nurse and the HCAs.

What I badly missed and was disappointed with was the visitors. I had one visitor – Munkie. No one else. Maybe it’s some odd British thing, but no one else visited and I felt the lack. It’s so easy to express good wishes over the interwebs and social media, but in general making an effort is more preferable. I got a couple of get well cards, which was really sweet and I understand why a few people couldn’t make it (taking care of munchkins who could easily disturb other patients or someone with a parent in hospital who is focused on that parent). But in general, if you are reading this, if I am ever in hospital again .. I WANT VISITORS.