Weee reading my discharge papers

I just love “MyChart” by Sunnybrook, a wonderful web-based access portal where I can see my lab results, notes written by my surgeon to other doctors, results of radiology tests and so forth. I just LOVE IT!
Here’s what was written with regards to my discharge from my lovely 3 week stay at Sunnybrook in early [...]

Oh My Stoma, How you Delight Me

I haven’t blogged in a while, and not because I didn’t have anything to “report” on but mostly due to sheer laziness.
I continue to have problems with my stoma, with my attempts at intermittent catheterisations tending to fail within a day or two of the foley being removed. Back in mid-August Dr Herschorn removed the [...]

Foley Catheter is back Again

Just when I thought I’d be foley-free, it’s back again. I had the appointment with Herschorn on Friday and I did manage to successfully insert a catheter on my own into the stoma. So I thought, as did the Urology Fellow that everything would be okay. I was instructed that at the 4-hour mark I [...]

Rosebud & the Catheter

I managed to bully my way into an appointment with my surgeon, which was today.
I am now without a pee bag and no more foley catheters. The doctor assured me that it wasn’t due to my rotund shape that I had problems with the stoma. A bit of scar tissue formed just under the surface [...]

Green Pee, Pink Pee, Rainbow Pee

The neverending saga of my stoma continues. Last week I went out to a pub with some friends, for the Building Bridges Pub Moot.  I only stayed for a couple of hours, since I had to get home cos my young sibling required access to my computer (his is down at the moment, being fixed).
Flash [...]

The Stoma, The Blood, The Tears

Thursday night, just before going to bed, I tried to do what everyone else in the world does before climbing into bed – I went to the toilet for a pee. Now, I pee in a different way, I pee by inserting a catheter into a stoma which is just right of my bellybutton. I [...]

Stoma & UTI

My little rosebud is hurting, badly.
Went to a walk-in clinic yesterday, cos I couldn’t wait to see my regular GP. The visit was amusing for myself, though I was partially doubled over in pain. Because of my medical history I am not your average everyday patient who can be found sitting in a medical clinic’s [...]

Hospital Appointment Today

Today is the one year anniversary of my surgery – the lovely & brutal one which sent me into ICU for 5 days, completely unconscious.
Anywho, today it was with the Uro-Gynecologist, Dr Lee from Sunnybrook. She and Dr Herschorn worked on a joint surgery for me – performing several procedures all at once. According to [...]

Stoma

I have decided to go “commando” with my stoma – that means that at night I do not put any dressing over the stoma. Lately I’ve been having a problem with chafed skin, sometimes breaking. I put this down to the MUKO (surgical jelly which has an alcohol base) and the StomaCare wipes I use…plus [...]

Stoma

… it tends to bleed now when I catheterize. I’m not thrilled by this.
On one mailing list that I am on – Exstrophy Adults (I have a birth condition called Bladder Exstrophy) – some of the ladies have written that ever since they’ve gotten their mitranoff their stomas tend to bleed when they have their [...]